Friends,
We have had a busy two months with Ruby who has been in and out of the hospital mostly related to her liver function. We have been using CHOP (Children's Hospital of Philadelphia) and are so grateful for their expertise and care of families in so many ways.
Ruby underwent a liver biopsy and many other tests which were difficult to go through. Ruby has been much less responsive since the last hospitalization, not waking up much. She's really not feeling well and not acting herself. This could be connected to liver function or something else. Needless to say, we've been busy trying to figure out what is going on and how to help.
The good news is that her liver numbers have been improving the last two weeks and no one can explain why. We look to Him and thank Him who surely has an explanation for these unexplained good reports. She was looking very jaundice, which has gone away almost completely now. The other good news is that Ruby has been gaining weight for the first time in over a year, and the vomiting episodes have been scarce. This, as you know, is a major breakthrough that we have all been hoping for a long time.
We are feeling a bit anxious for Ruby's alertness to return. If you've experienced illness like this you'll understand when I say we miss her in the midst of it. We maintain hope that the liver labs we are seeing and subtle signs of recovery will turn shortly into full recovery and she'll be on the upswing again.
Thank you for your continued prayers:
*Returned alertness and interaction
*Continued and complete healing of liver function
*Continued growth and development unto life and health
Thank you! We love Ruby, and honestly - love taking care of her.
Mitch&Katie
p.s. Attached is a fun little video from before Ruby got sick, she loves her Daddy!
